Lasting Impressions Coffee NF Research & Advocacy Hub

Find care

Start with the right clinic and the right questions.

NF care may involve several specialties. Use trusted directories to find experienced providers, then confirm that the clinic serves your age group, NF diagnosis, and current needs.

Pediatric to adult care

Transitioning to Adult Care

Health care transition is a gradual process of planning, transferring care, and becoming established in adult-centered care. The timing and team will differ from person to person, so begin early enough to reduce the chance of a gap in care.

Begin the conversation

  • Ask when pediatric care ends and when transition planning begins.
  • Identify which current providers can continue seeing you as an adult.
  • Ask whether the pediatric team recommends an adult NF clinic or other adult providers.
  • Check whether insurance, referrals, authorizations, or consent rules will change.

Build the handoff

  • Request a concise medical summary and current care or monitoring plan.
  • Gather important imaging, pathology, genetic testing, surgery, and treatment records.
  • Ask the pediatric and adult teams to communicate directly when possible.
  • Confirm who remains responsible for prescriptions, results, and pending referrals until adult care begins.

Set up adult care

  • Schedule the first adult appointment before pediatric care ends when possible.
  • Confirm that the new provider received and reviewed the transfer records.
  • Ask who will coordinate NF-related care and how primary and specialty care will work together.
  • If no adult NF clinic is nearby, ask about shared care with local providers and a more distant NF center.

Confirm the transition

  • Review who handles each part of care and whom to contact about a new concern.
  • Schedule ordered imaging, referrals, and follow-up visits.
  • Keep a copy of the first adult visit summary and update your personal health record.
  • Confirm that no pending result, refill, order, or referral was lost during the transfer.

Transition summary · 2 pages

NF Transition Summary

Organize current NF care, monitoring, treatment history, medications, results, care-team contacts, open plans, and the records needed for the first adult visit.

Download transition summary

Transition checklist · 2 pages

Pediatric-to-Adult Care Transition Checklist

Track the handoff, records, prescriptions, referrals, authorizations, appointments, care coordination, and remaining responsibilities.

Download transition checklist