Google looks for pages containing every word you enter. Use this to narrow a broad topic.
NF1 treatment approvalTrusted places to start
Research & News Sources
The maintained source directory now lives with Getting Started so research and news sources appear once, in one searchable place.
Organizations & community
Updates from selected NF organizations
Recent posts from the connected organization news feeds. Research publications remain in Research → Getting Started so the same records are not repeated here.
Checking selected news feeds…
Automatically collected only from selected organization feeds that provide a usable public NF feed; this is not a complete list of NF organizations or updates. Newly listed clinic pages remain searchable links unless the institution provides a reliable NF-specific feed, preventing unrelated hospital news from entering this table. An organization post is not the same as a peer-reviewed study or official clinical-trial result.
NF news
Follow NF research, care, advocacy, and community news.
Start with trusted sources, then check whether an update is a peer-reviewed study, clinical-trial record, organizational announcement, or personal story.
Build a focused Google query
Advanced NF News Search
Combine search terms and filters without memorizing Boolean operators. Select common NF terms below or enter your own. Leave any field blank if you do not need it.
1. Choose a topic shortcutOptional — you can also type directly into the fields. (For the “OR” operator)
2. Choose where to searchThen try an example or build your own search.
3. Add search detailsUse only the fields that help narrow your question.
Search only a trusted source:
4. Review your Google search query
Open Search in Google Your finished search query will appear here.
Open Search in Google becomes available after you add at least one search term or filter.
Search tip: Results may include news, research, opinion, advertising, and outdated information. Confirm important claims with the original study, trial record, organization, or government source.
How This WorksBoolean search explained in plain language
The form builds the search language for you.
Your selections are translated into Boolean terms and Google search operators. The site does not search, save, or analyze your results; it sends the completed query to Google Web or Google News.
Keeps words together in the same order. Useful for tumor names, study titles, or quotations.
“plexiform neurofibroma”Finds pages containing at least one option. Use it for synonyms or related terms.
trial OR study OR researchRemoves pages containing unwanted words. This reduces unrelated or commercial results.
-fundraising -merchandiseLimit results to one domain, words in a title or address, or documents such as PDFs.
site:nih.gov filetype:pdfAfter and before filters help focus on a period. Check the date on the original page too.
after:2025-01-01Before trusting a result
- Open the original source - not only a headline, repost, or search snippet.
- Check the author, organization, publication date, and whether the page has been updated.
- Separate peer-reviewed research, trial records, announcements, opinions, and personal stories.
- For medical claims, look for the study population, evidence level, limitations, and conflicts of interest.
- Confirm important information with another credible source and discuss treatment decisions with a qualified clinician.
Downloadable guide
Download PDF Boolean Search Guide
Keep the Google-specific operator reference, NF search examples, date and operator limitations, and results-checking checklist.