Lasting Impressions Coffee NF Research & Advocacy Hub

Find care

Start with the right clinic and the right questions.

NF care may involve several specialties. Use trusted directories to find experienced providers, then confirm that the clinic serves your age group, NF diagnosis, and current needs.

Practical preparation

Prepare for Your Appointment

Organize your health history, describe new concerns, plan your questions, and keep track of what happens next. The fillable forms can be completed digitally or printed.

All four forms · 4 pagesNF Appointment Toolkit

Download all four fillable, printer-friendly forms together, including the Important Appointment Reminders form.

Download complete toolkit
Tool 1Start here

Important Appointment Reminders

Use a fillable checklist to keep essential items, records, questions, and contact details together.

  • Photo ID and insurance information
  • Provider, pharmacy, and emergency contact details
  • Medical history, imaging, symptoms, and priority questions
  • Follow-up, results, and care-coordination reminders
Download this form
Tool 2

One-page NF health summary

Give a new provider a quick, organized view of the information most important to your care.

  • NF diagnosis and important manifestations
  • Tumors or concerns being monitored
  • Surgeries, treatments, medications, and allergies
  • Recent imaging and key provider contacts
Download this form
Tool 3

Symptoms and priority questions

Describe what changed and make sure the concerns that matter most are discussed first.

  • What changed, when it began, and where it is
  • Frequency, severity, and effect on daily activities
  • What makes it better or worse
  • Your three most important questions
Useful questions for the visit
  • What are we monitoring and why?
  • What changes should I report before my next visit?
  • Who should I contact, and when should follow-up happen?
Download this form
Tool 4

Follow-up and next steps

Record the plan before you leave so responsibilities, timing, and contacts are clear.

  • Tests, imaging, referrals, or medication changes
  • Who is responsible for each next step
  • When results should be available and whom to contact
  • Next appointment and records to request
Download this form