Transition summary · 2 pages
NF Transition Summary
Organize current NF care, monitoring, treatment history, medications, results, care-team contacts, open plans, and the records needed for the first adult visit.
Download transition summaryFind care
Start with the right clinic and the right questions.
NF care may involve several specialties. Use trusted directories to find experienced providers, then confirm that the clinic serves your age group, NF diagnosis, and current needs.
Trusted starting points
Choose how you want to search for NF care.
Open an external care directory below, or use the combined directory on this page to search clinics and programs by name, location, and category.
Primary directory
Find an NF Clinic Network provider
Search Children’s Tumor Foundation-recognized clinics in the United States and Canada by location, NF type, age range, and areas of care.
Children’s Tumor Foundation Additional directoryExplore NF clinical care options
Review another searchable list of NF clinics and doctors, including specialties, age ranges, locations, and contact information.
Neurofibromatosis Network Rare-disease helpAsk a GARD information specialist
Find rare-disease information, financial-assistance resources, communication tools, and help locating support.
NIH Genetic and Rare Diseases Information CenterNF care directory
Find an NF clinic or care program
Search CTF NF Clinic Network members and additional programs whose own listings identify NF or Neurofibromatosis care.
100 of 100 programs
View 100 clinics and programs
AdventHealth for ChildrenOrlando, FL
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Akron Children’s HospitalAkron, OH
CTF NF Clinic Network
Age group: Both — Pediatric and adult through age 25
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Albany Medical CenterAlbany, NY
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
American Family Children’s Hospital (UW Health)Madison, WI
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Ann & Robert H. Lurie Children’s Hospital of ChicagoChicago, IL
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Arkansas Children’s HospitalLittle Rock, AR
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Ascension Columbia St. Mary’s Hospital - Van Dyke Cancer CenterMilwaukee, WI
Hospital-based NF care
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Linked page: General or directory page - confirm NF services with the program
Confirm current details with the program, including referrals, contact information, and availability.
Boston Children’s HospitalBoston, MA
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Program information available
Confirm current details with the program, including referrals, contact information, and availability.
Centre hospitalier de l’Université de Montréal (CHUM)Montréal, QC
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Children’s Healthcare of AtlantaAtlanta, GA
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Children’s Hospital at Montefiore (CHAM)Bronx, NY
CTF NF Clinic Network
Age group: Pediatric
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Children’s Hospital ColoradoAurora, CO
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Children’s Hospital Los AngelesLos Angeles, CA
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Children’s Hospital New OrleansNew Orleans, LA
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Children’s Hospital of Orange County (CHOC)Orange, CA
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Children’s Hospital of PhiladelphiaPhiladelphia, PA
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Program information available
Confirm current details with the program, including referrals, contact information, and availability.
Children’s Mercy Kansas CityKansas City, MO
CTF NF Clinic Network
Age group: Pediatric — Pediatric through age 21
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Children’s MinnesotaMinneapolis, MN
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Children’s National HospitalWashington, DC
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Children’s NebraskaOmaha, NE
CTF NF Clinic Network
Age group: Pediatric
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Children’s WisconsinMilwaukee, WI
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
CHU Sainte-JustineMontréal, QC
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Cincinnati Children’s Hospital Medical CenterCincinnati, OH
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Program information available
Confirm current details with the program, including referrals, contact information, and availability.
Cleveland ClinicCleveland, OH
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis
Care areas: Multidisciplinary care
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Program information available
Confirm current details with the program, including referrals, contact information, and availability.
Columbia University Irving Medical CenterNew York, NY
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Connecticut Children’s Medical CenterHartford, CT
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Corewell Health Helen DeVos Children’s HospitalGrand Rapids, MI
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Dell Children’s Medical CenterAustin, TX
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Duke University School of MedicineDurham, NC
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Multidisciplinary care
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Froedtert & the Medical College of Wisconsin Clinical Cancer CenterMilwaukee, WI
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Geisinger Medical CenterDanville, PA
NF-related specialty care
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis
Care areas: Multidisciplinary care
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Linked page: General or directory page - confirm NF services with the program
Confirm current details with the program, including referrals, contact information, and availability.
Golisano Children’s Hospital of BuffaloBuffalo, NY
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Henry Ford HealthDetroit, MI
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
House ClinicLos Angeles, CA
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Indiana University Health - Riley Hospital for ChildrenIndianapolis, IN
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Multidisciplinary care
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Johns Hopkins All Children’s HospitalSt. Petersburg, FL
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Johns Hopkins UniversityBaltimore, MD
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Kaiser Permanente Northern CaliforniaOakland, CA
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Le Bonheur Children’s Hospital and St. Jude Children’s Research HospitalMemphis, TN
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Program information available
Confirm current details with the program, including referrals, contact information, and availability.
Loma Linda University Children’s HospitalLoma Linda, CA
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Lucile Packard Children’s Hospital StanfordPalo Alto, CA
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Massachusetts General HospitalBoston, MA
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Mayo Clinic ArizonaPhoenix, AZ
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Mayo Clinic FloridaJacksonville, FL
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Mayo Clinic MinnesotaRochester, MN
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
McGill University Health Centre (MUHC)Montréal, QC
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Memorial Sloan Kettering Neurofibromatosis ClinicNew York, NY
Multidisciplinary NF clinic
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Multidisciplinary care
Reviewed information source: Memorial Sloan Kettering, Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Moffitt Cancer CenterTampa, FL
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
MUSC HealthCharleston, SC
Hospital-based NF care
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Program information available
Linked page: General or directory page - confirm NF services with the program
Confirm current details with the program, including referrals, contact information, and availability.
National Cancer InstituteBethesda, MD
NF research and clinical trials
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Program information available
Confirm current details with the program, including referrals, contact information, and availability.
Nationwide Children’s HospitalColumbus, OH
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Nemours Children’s Hospital, DelawareWilmington, DE
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Nicklaus Children’s HospitalMiami, FL
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Northwestern MedicineChicago, IL
NF-related specialty care
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Linked page: General or directory page - confirm NF services with the program
Confirm current details with the program, including referrals, contact information, and availability.
Norton Children’s Neuroscience InstituteLouisville, KY
Pediatric NF care
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
NYU Langone HealthNew York, NY
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
OHSU Doernbecher Children’s Hospital Pediatric Neurofibromatosis ProgramPortland, OR
Pediatric NF care
Age group: Pediatric
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
OHSU Neuro-Oncology Genetics ClinicPortland, OR
Adult NF care
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Penn State Health Milton S. Hershey Medical CenterHershey, PA
CTF NF Clinic Network
Age group: Pediatric — Pediatric through age 23
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Phoenix Children’s HospitalPhoenix, AZ
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Prisma Health UpstateGreenville, SC
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Rainbow Babies & Children’s HospitalCleveland, OH
CTF NF Clinic Network
Age group: Pediatric
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Roswell Park Comprehensive Cancer CenterBuffalo, NY
CTF NF Clinic Network
Age group: Adult
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Multispecialty care
Reviewed information source: Roswell Park Comprehensive Cancer Center
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Rutgers New Jersey Medical SchoolNewark, NJ
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Saint Louis UniversitySt. Louis, MO
CTF NF Clinic Network
Age group: Pediatric — Pediatric through age 21
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Sanford HealthFargo, ND
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Seattle Children’sSeattle, WA
CTF NF Clinic Network
Age group: Both — Pediatric and adult through age 21
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Shriners Children’sMultiple U.S. locations
Pediatric NF-related orthopedic care
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Linked page: NF services vary by Shriners location - confirm availability with the individual hospital
Confirm current details with the program, including referrals, contact information, and availability.
SSM Health Cardinal Glennon Children’s Hospital Neurofibromatosis ClinicSt. Louis, MO
Pediatric NF clinic
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
St. Joseph’s University Medical CenterPaterson, NJ
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Swedish Medical CenterSeattle, WA
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Texas Children’s HospitalHouston, TX
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
The Hospital for Sick Children (SickKids)Toronto, ON
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
The Ohio State UniversityColumbus, OH
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
UAMS Adult Neurofibromatosis ClinicLittle Rock, AR
Adult NF clinic
Age group: Adult
NF conditions: Not specified in reviewed source.
Care areas: Multidisciplinary care
Reviewed information source: Children’s Tumor Foundation and UAMS announcement
Reviewed: September 5, 2026
NF research or clinical trials: Program information available
Confirm current details with the program, including referrals, contact information, and availability.
UCSF Benioff Children’s HospitalSan Francisco, CA
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University Health NetworkToronto, ON
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University Hospitals NF2 CenterCleveland, OH
NF2-related schwannomatosis care
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University of Alabama at BirminghamBirmingham, AL
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Program information available
Confirm current details with the program, including referrals, contact information, and availability.
University of California, Los Angeles (UCLA)Los Angeles, CA
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University of ChicagoChicago, IL
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University of Florida Health JacksonvilleJacksonville, FL
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University of Florida Health Neuromedicine HospitalGainesville, FL
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University of Illinois ChicagoChicago, IL
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University of Iowa Health CareIowa City, IA
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University of KentuckyLexington, KY
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University of MinnesotaMinneapolis, MN
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University of North Carolina HospitalsChapel Hill, NC
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University of Oklahoma Health Sciences CenterOklahoma City, OK
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University of Pittsburgh Medical CenterPittsburgh, PA
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University of Rochester Medical CenterRochester, NY
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University of Texas MD Anderson Cancer CenterHouston, TX
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University of Utah HealthSalt Lake City, UT
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Multidisciplinary care
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
University of WashingtonSeattle, WA
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
UT Southwestern Medical CenterDallas, TX
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Valley Children’s HealthcareMadera, CA
CTF NF Clinic Network
Age group: Not specified in reviewed source.
NF conditions: Not specified in reviewed source.
Care areas: Not specified in reviewed source.
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Vanderbilt University Medical CenterNashville, TN
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Virginia Commonwealth University HealthRichmond, VA
CTF NF Clinic Network
Age group: Both — Pediatric and adult through age 22
NF conditions: NF1, NF2-related schwannomatosis
Care areas: Not specified in reviewed source.
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Wake Forest Baptist HealthWinston-Salem, NC
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Multidisciplinary care
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Washington University in St. LouisSt. Louis, MO
CTF NF Clinic Network
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Other schwannomatoses
Care areas: Multidisciplinary care
Reviewed information source: Neurofibromatosis Network directory
Reviewed: September 5, 2026
NF research or clinical trials: Not identified in this directory
Confirm current details with the program, including referrals, contact information, and availability.
Directories are a starting point
Clinic services, providers, age limits, insurance participation, and appointment availability can change. Contact the clinic directly to confirm current details. If symptoms are urgent, use appropriate emergency or local medical services rather than waiting for a specialty appointment.
This directory combines CTF NF Clinic Network members with additional programs whose own listings identify NF or Neurofibromatosis care. Labels clarify why each program is included. Clinic information can change. Confirm diagnoses served, age limits, referrals, insurance, telehealth, and appointment availability directly with the clinic.
Clinic comparison
Compare up to three programs
Select programs from the directory above. The comparison uses information available in this directory and identifies details to confirm directly.
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Open the directory results and choose Add to comparison for the programs you want to review together.
This comparison does not rank or recommend clinics. Details can change; confirm current information directly with each program.
Questions to confirm with each program- Does the program treat my NF condition and concern?
- Does it see adults, children, or both?
- Is a referral required?
- Which records, imaging, or genetic test results are needed?
- Does the program accept my insurance?
- Are telehealth visits available?
- What is the current scheduling and appointment availability?
Practical care support
Find help with healthcare costs, prescriptions, travel, or lodging.
Choose the kind of support and your state. National programs are shown alongside state or local starting points when a dependable directory is available.
View 4 resources
Air Charity NetworkVolunteer-pilot transportation for eligible people traveling to specialized medical care.Miracle FlightsMedical travel assistance focused on children and families traveling to specialized care.South Carolina Medicaid transportation contactIf you have Medicaid, use the state-contact directory to ask whether non-emergency medical transportation is covered and how to arrange it.South Carolina local 211Search or call 211 for local medical transportation and related community resources.
Important: This finder currently emphasizes United States programs and state-specific starting points. People outside the U.S. should confirm comparable support through local health systems, government agencies, and NF organizations. Eligibility, service areas, medical-clearance requirements, notice requirements, cost, and availability vary. Confirm details directly before making travel plans.
Coordinated care
What might an NF care team include?
The right team depends on the person and the concerns being evaluated. An NF clinic may coordinate care across specialties rather than provide every service in one visit.
NF specialist or geneticistNeurologyOncologyNeurosurgeryAudiology or otologyOphthalmologyOrthopedicsDermatology or plastic surgeryPain managementMental healthLearning or developmental supportPrimary care
Pediatric to adult care
Transitioning to Adult Care
Health care transition is a gradual process of planning, transferring care, and becoming established in adult-centered care. The timing and team will differ from person to person, so begin early enough to reduce the chance of a gap in care.
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Transition checklist · 2 pages
Pediatric-to-Adult Care Transition Checklist
Track the handoff, records, prescriptions, referrals, authorizations, appointments, care coordination, and remaining responsibilities.
Download transition checklistPractical preparation
Prepare for Your Appointment
Organize your health history, describe new concerns, plan your questions, and keep track of what happens next. The fillable forms can be completed digitally or printed.
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