Lasting Impressions Coffee NF Research & Advocacy Hub

Find care

Start with the right clinic and the right questions.

NF care may involve several specialties. Use trusted directories to find experienced providers, then confirm that the clinic serves your age group, NF diagnosis, and current needs.

Trusted starting points

Choose how you want to search for NF care.

Open an external care directory below, or use the combined directory on this page to search clinics and programs by name, location, and category.

Primary directory

Find an NF Clinic Network provider

Search Children’s Tumor Foundation-recognized clinics in the United States and Canada by location, NF type, age range, and areas of care.

Children’s Tumor Foundation Additional directory

Explore NF clinical care options

Review another searchable list of NF clinics and doctors, including specialties, age ranges, locations, and contact information.

Neurofibromatosis Network Rare-disease help

Ask a GARD information specialist

Find rare-disease information, financial-assistance resources, communication tools, and help locating support.

NIH Genetic and Rare Diseases Information Center

NF care directory

Find an NF clinic or care program

Search CTF NF Clinic Network members and additional programs whose own listings identify NF or Neurofibromatosis care.

100 of 100 programs
View 100 clinics and programs
AdventHealth for ChildrenOrlando, FL

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Akron Children’s HospitalAkron, OH

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Albany Medical CenterAlbany, NY

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
American Family Children’s Hospital (UW Health)Madison, WI

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Ann & Robert H. Lurie Children’s Hospital of ChicagoChicago, IL

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Arkansas Children’s HospitalLittle Rock, AR

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Ascension Columbia St. Mary’s Hospital - Van Dyke Cancer CenterMilwaukee, WI

Hospital-based NF care
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Linked page: General or directory page - confirm NF services with the program
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Boston Children’s HospitalBoston, MA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Verified program information available
Review the linked program page and confirm services, referrals, contact information, and current availability.

Research information Visit program website
Centre hospitalier de l’Université de Montréal (CHUM)Montréal, QC

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Children’s Healthcare of AtlantaAtlanta, GA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Children’s Hospital at Montefiore (CHAM)Bronx, NY

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Children’s Hospital ColoradoAurora, CO

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Children’s Hospital Los AngelesLos Angeles, CA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Children’s Hospital New OrleansNew Orleans, LA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Children’s Hospital of Orange County (CHOC)Orange, CA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Children’s Hospital of PhiladelphiaPhiladelphia, PA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Verified program information available
Review the linked program page and confirm services, referrals, contact information, and current availability.

Research information Visit program website
Children’s Mercy Kansas CityKansas City, MO

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Children’s MinnesotaMinneapolis, MN

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Children’s National HospitalWashington, DC

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Children’s NebraskaOmaha, NE

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Children’s WisconsinMilwaukee, WI

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
CHU Sainte-JustineMontréal, QC

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Cincinnati Children’s Hospital Medical CenterCincinnati, OH

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Verified program information available
Review the linked program page and confirm services, referrals, contact information, and current availability.

Research information Visit program website
Cleveland ClinicCleveland, OH

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Verified program information available
Review the linked program page and confirm services, referrals, contact information, and current availability.

Research information Visit program website
Columbia University Irving Medical CenterNew York, NY

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Connecticut Children’s Medical CenterHartford, CT

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Corewell Health Helen DeVos Children’s HospitalGrand Rapids, MI

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Dell Children’s Medical CenterAustin, TX

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Duke University School of MedicineDurham, NC

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Froedtert & the Medical College of Wisconsin Clinical Cancer CenterMilwaukee, WI

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Geisinger Medical CenterDanville, PA

NF-related specialty care
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Linked page: General or directory page - confirm NF services with the program
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Golisano Children’s Hospital of BuffaloBuffalo, NY

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Henry Ford HealthDetroit, MI

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
House ClinicLos Angeles, CA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Indiana University Health - Riley Hospital for ChildrenIndianapolis, IN

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Johns Hopkins All Children’s HospitalSt. Petersburg, FL

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Johns Hopkins UniversityBaltimore, MD

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Kaiser Permanente Northern CaliforniaOakland, CA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Le Bonheur Children’s Hospital and St. Jude Children’s Research HospitalMemphis, TN

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Verified program information available
Review the linked program page and confirm services, referrals, contact information, and current availability.

Research information Visit program website
Loma Linda University Children’s HospitalLoma Linda, CA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Lucile Packard Children’s Hospital StanfordPalo Alto, CA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Massachusetts General HospitalBoston, MA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Mayo Clinic ArizonaPhoenix, AZ

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Mayo Clinic FloridaJacksonville, FL

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Mayo Clinic MinnesotaRochester, MN

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
McGill University Health Centre (MUHC)Montréal, QC

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Memorial Sloan Kettering Neurofibromatosis ClinicNew York, NY

Multidisciplinary NF clinic
Age group: Both
NF conditions: NF1, NF2-related schwannomatosis, Schwannomatosis
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Moffitt Cancer CenterTampa, FL

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
MUSC HealthCharleston, SC

Hospital-based NF care
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Verified program information available
Linked page: General or directory page - confirm NF services with the program
Review the linked program page and confirm services, referrals, contact information, and current availability.

Research information Visit program website
National Cancer InstituteBethesda, MD

NF research and clinical trials
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Verified program information available
Review the linked program page and confirm services, referrals, contact information, and current availability.

Research information Visit program website
Nationwide Children’s HospitalColumbus, OH

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Nemours Children’s Hospital, DelawareWilmington, DE

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Nicklaus Children’s HospitalMiami, FL

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Northwestern MedicineChicago, IL

NF-related specialty care
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Linked page: General or directory page - confirm NF services with the program
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Norton Children’s Neuroscience InstituteLouisville, KY

Pediatric NF care
Age group: Pediatric
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
NYU Langone HealthNew York, NY

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
OHSU Doernbecher Children’s Hospital Pediatric Neurofibromatosis ProgramPortland, OR

Pediatric NF care
Age group: Pediatric
NF conditions: NF1
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
OHSU Neuro-Oncology Genetics ClinicPortland, OR

Adult NF care
Age group: Adult
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Penn State Health Milton S. Hershey Medical CenterHershey, PA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Phoenix Children’s HospitalPhoenix, AZ

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Prisma Health UpstateGreenville, SC

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Rainbow Babies & Children’s HospitalCleveland, OH

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Roswell Park Comprehensive Cancer CenterBuffalo, NY

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Rutgers New Jersey Medical SchoolNewark, NJ

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Saint Louis UniversitySt. Louis, MO

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Sanford HealthFargo, ND

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Seattle Children’sSeattle, WA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Shriners Children’sMultiple U.S. locations

Pediatric NF-related orthopedic care
Age group: Pediatric
NF conditions: NF1
NF research or clinical trials: Not identified in this directory
Linked page: NF services vary by Shriners location - confirm availability with the individual hospital
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
SSM Health Cardinal Glennon Children’s Hospital Neurofibromatosis ClinicSt. Louis, MO

Pediatric NF clinic
Age group: Pediatric
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
St. Joseph’s University Medical CenterPaterson, NJ

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Swedish Medical CenterSeattle, WA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Texas Children’s HospitalHouston, TX

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
The Hospital for Sick Children (SickKids)Toronto, ON

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
The Ohio State UniversityColumbus, OH

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
UAMS Adult Neurofibromatosis ClinicLittle Rock, AR

Adult NF clinic
Age group: Adult
NF conditions: NF1, NF2-related schwannomatosis, Schwannomatosis
NF research or clinical trials: Verified program information available
Review the linked program page and confirm services, referrals, contact information, and current availability.

Research information Visit program website
UCSF Benioff Children’s HospitalSan Francisco, CA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University Health NetworkToronto, ON

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University Hospitals NF2 CenterCleveland, OH

NF2-related schwannomatosis care
Age group: Confirm with program
NF conditions: NF2-related schwannomatosis
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University of Alabama at BirminghamBirmingham, AL

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Verified program information available
Review the linked program page and confirm services, referrals, contact information, and current availability.

Research information Visit program website
University of California, Los Angeles (UCLA)Los Angeles, CA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University of ChicagoChicago, IL

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University of Florida Health JacksonvilleJacksonville, FL

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University of Florida Health Neuromedicine HospitalGainesville, FL

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University of Illinois ChicagoChicago, IL

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University of Iowa Health CareIowa City, IA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University of KentuckyLexington, KY

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University of MinnesotaMinneapolis, MN

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University of North Carolina HospitalsChapel Hill, NC

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University of Oklahoma Health Sciences CenterOklahoma City, OK

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University of Pittsburgh Medical CenterPittsburgh, PA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University of Rochester Medical CenterRochester, NY

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University of Texas MD Anderson Cancer CenterHouston, TX

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University of Utah HealthSalt Lake City, UT

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
University of WashingtonSeattle, WA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
UT Southwestern Medical CenterDallas, TX

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Valley Children’s HealthcareMadera, CA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Vanderbilt University Medical CenterNashville, TN

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Virginia Commonwealth University HealthRichmond, VA

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Wake Forest Baptist HealthWinston-Salem, NC

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website
Washington University in St. LouisSt. Louis, MO

CTF NF Clinic Network
Age group: Confirm with program
NF conditions: Confirm with program
NF research or clinical trials: Not identified in this directory
Review the linked program page and confirm services, referrals, contact information, and current availability.

Visit program website

Directories are a starting point
Clinic services, providers, age limits, insurance participation, and appointment availability can change. Contact the clinic directly to confirm current details. If symptoms are urgent, use appropriate emergency or local medical services rather than waiting for a specialty appointment.

This directory combines CTF NF Clinic Network members with additional programs whose own listings identify NF or Neurofibromatosis care. Labels clarify why each program is included. Clinic information can change. Confirm diagnoses served, age limits, referrals, insurance, telehealth, and appointment availability directly with the clinic.

Clinic comparison

Compare up to three programs

Select programs from the directory above. The comparison uses information available in this directory and identifies details to confirm directly.

0 of 3 selected
Open the directory results and choose Add to comparison for the programs you want to review together.

This comparison does not rank or recommend clinics. Services, eligibility, referrals, insurance, telehealth, and availability can change; confirm current details directly with each program.

Before contacting a clinic: Confirm whether it treats NF1, NF2-related schwannomatosis, other schwannomatoses, or your specific concern. Ask whether it sees adults, children, or both. Check whether a referral, prior records, imaging, or genetic test results are required. Verify insurance participation and ask about expected scheduling time. If travel is difficult, ask whether an initial or follow-up visit can be completed by telehealth.

Practical care support

Find help with healthcare costs, prescriptions, travel, or lodging.

Choose the kind of support and your state. National programs are shown alongside state or local starting points when a dependable directory is available.

Air Charity NetworkVolunteer-pilot transportation for eligible people traveling to specialized medical care.Miracle FlightsMedical travel assistance focused on children and families traveling to specialized care.South Carolina Medicaid transportation contactIf you have Medicaid, use the state-contact directory to ask whether non-emergency medical transportation is covered and how to arrange it.South Carolina local 211Search or call 211 for local medical transportation and related community resources.

Important: This finder currently emphasizes United States programs and state-specific starting points. People outside the U.S. should confirm comparable support through local health systems, government agencies, and NF organizations. Eligibility, service areas, medical-clearance requirements, notice requirements, cost, and availability vary. Confirm details directly before making travel plans.

Coordinated care

What might an NF care team include?

The right team depends on the person and the concerns being evaluated. An NF clinic may coordinate care across specialties rather than provide every service in one visit.

NF specialist or geneticistNeurologyOncologyNeurosurgeryAudiology or otologyOphthalmologyOrthopedicsDermatology or plastic surgeryPain managementMental healthLearning or developmental supportPrimary care