Find NF organizations moving research, care, and community forward.

Provides education, support, provider information, and research resources about vestibular schwannomas, including concerns relevant to NF2-related schwannomatosis.

Brazilian NF association providing patient education, support, professional information, and advocacy.

Portuguese NF association supporting patients and families through information, awareness, advocacy, and community activities.

French patient association offering information, support, awareness, and advocacy for people affected by NF.

Supports individuals and families affected by NF through programs that provide meaningful experiences, kindness, and practical community support.

German national NF organization advancing patient support, education, advocacy, and research awareness.

Supports children and young people with NF1 and their families across the United Kingdom with practical information and community connection.

Supports European collaboration in NF research, clinical care, advocacy, and patient engagement.

Australia’s national NF patient advocacy and support organization for children, adults, and families.

Funds research into potential gene, cell, and immunotherapy approaches and connects families affected by NF2-related schwannomatosis.

Supports children with NF and their families through education, advocacy, community programs, and research-focused initiatives.

Dutch patient association providing NF information, peer connection, advocacy, and support.

Funds high-impact scientific and medical research focused on targeted treatments for NF1 and leads NF awareness and fundraising initiatives.

Connects families associated with Children’s Hospital of Philadelphia to NF support, education, and community resources.

Swedish neurological patient organization offering information, advocacy, and community resources that include people affected by NF.

Connects Californians affected by NF with regional information, community support, events, and NF Network resources.

Serves individuals and families in the central Plains through NF education, support, awareness, and community connection.

Connects U.S. NF nonprofits and resource partners to strengthen collaboration, awareness, and community support.

Raises NF awareness and supports the Japanese NF community while encouraging research and better treatment options.

Danish NF community organization sharing information, peer support, activities, and advocacy resources.

Supports children and families affected by NF in Austria while promoting awareness, care, and research.

Offers education, NF specialist information, peer connection, events, advocacy, scholarships, and practical support through MiNF Cares for people and families across Michigan.

Supports children, adults, and families through education, community programs, clinic development, and NF research.

Norwegian NF organization connecting patients and families through information, peer support, events, and advocacy.

Builds regional connection and shares support, education, and community information for people affected by NF.

Provides support, education, advocacy, community programs, and research funding for people and families across the northeastern United States.

Makes NF and schwannomatosis research easier to understand through clear, expert-reviewed summaries for patients, families, and caregivers.

Provides NF awareness, education, family support, and community opportunities for people across Tennessee.

Funds NF1 research, expands NF awareness through school and community campaigns, and supports adaptive programs for children and teens with disabilities.

Advocates for people with rare diseases, including improved diagnosis, access to care, policy, and patient support.

Provides education, referrals, family support, and advocacy while helping advance NF research in Texas and beyond.

Brings people together through athletic and community fundraising efforts that increase NF awareness and support research.

Supports people in British Columbia affected by NF through information, family connection, advocacy, and community programs.