Events
Opportunities to connect with the NF community.
Community, education, clinical, and fundraising events listed by NF-related organizations.
More NF organizations
Explore every additional nonprofit organization.
These are the nonprofit organizations from the Organizations directory whose dated events are not currently represented in the USA or international master calendar. Open a region, follow the best available organization or events link, and confirm current dates, locations, costs, accessibility, and registration directly with the organization.
International networks3 organizations
Children’s Tumor Foundation EuropeSupports European collaboration in NF research, clinical care, advocacy, and patient engagement.View best available event source Cure NF2 FoundationFunds research into potential gene, cell, and immunotherapy approaches and connects families affected by NF2-related schwannomatosis.View best available event source NF CollectiveConnects U.S. NF nonprofits and resource partners to strengthen collaboration, awareness, and community support.View best available event source
United States13 organizations
Acoustic Neuroma AssociationProvides education, support, provider information, and research resources about vestibular schwannomas, including concerns relevant to NF2-related schwannomatosis.View best available event source B the DifferenceSupports individuals and families affected by NF through programs that provide meaningful experiences, kindness, and practical community support.View best available event source Littlest Tumor FoundationSupports children with NF and their families through education, advocacy, community programs, and research-focused initiatives.View best available event source Neurofibromatosis Empowerment in Detroit (NFX)Funds high-impact scientific and medical research focused on targeted treatments for NF1 and leads NF awareness and fundraising initiatives.View best available event source Neurofibromatosis Family Association at CHOPConnects families associated with Children’s Hospital of Philadelphia to NF support, education, and community resources.View best available event source NF CaliforniaConnects Californians affected by NF with regional information, community support, events, and NF Network resources.View best available event source NF Central PlainsServes individuals and families in the central Plains through NF education, support, awareness, and community connection.View best available event source NF MichiganOffers education, NF specialist information, peer connection, events, advocacy, scholarships, and practical support through MiNF Cares for people and families across Michigan.View best available event source NF North CentralBuilds regional connection and shares support, education, and community information for people affected by NF.View best available event source NF SimplifiedMakes NF and schwannomatosis research easier to understand through clear, expert-reviewed summaries for patients, families, and caregivers.View best available event source Penny’s Flight FoundationFunds NF1 research, expands NF awareness through school and community campaigns, and supports adaptive programs for children and teens with disabilities.View best available event source Texas Neurofibromatosis FoundationProvides education, referrals, family support, and advocacy while helping advance NF research in Texas and beyond.View best available event source The NF TeamBrings people together through athletic and community fundraising efforts that increase NF awareness and support research.View best available event source
Canada, United Kingdom, Ireland & Australia3 organizations
Childhood Tumour TrustSupports children and young people with NF1 and their families across the United Kingdom with practical information and community connection.View best available event source Children’s Tumour Foundation AustraliaAustralia’s national NF patient advocacy and support organization for children, adults, and families.View best available event source Tumour Foundation of BCSupports people in British Columbia affected by NF through information, family connection, advocacy, and community programs.View best available event source
Continental Europe8 organizations
APNF (Portugal)Portuguese NF association supporting patients and families through information, awareness, advocacy, and community activities.View best available event source Association Neurofibromatoses et Recklinghausen (France)French patient association offering information, support, awareness, and advocacy for people affected by NF.View best available event source Bundesverband Neurofibromatose (Germany)German national NF organization advancing patient support, education, advocacy, and research awareness.View best available event source Neurofibromatose Vereniging NederlandDutch patient association providing NF information, peer connection, advocacy, and support.View best available event source Neuroförbundet (Sweden)Swedish neurological patient organization offering information, advocacy, and community resources that include people affected by NF.View best available event source NF DanmarkDanish NF community organization sharing information, peer support, activities, and advocacy resources.View best available event source NF Kinder (Austria)Supports children and families affected by NF in Austria while promoting awareness, care, and research.View best available event source NF NorgeNorwegian NF organization connecting patients and families through information, peer support, events, and advocacy.View best available event source
Latin America, Asia & Africa3 organizations
AMANF (Brazil)Brazilian NF association providing patient education, support, professional information, and advocacy.View best available event source NF Cure JapanRaises NF awareness and supports the Japanese NF community while encouraging research and better treatment options.View best available event source Rare Diseases South AfricaAdvocates for people with rare diseases, including improved diagnosis, access to care, policy, and patient support.View best available event source